Locked-In Syndrome is a rare neurological disorder characterized by complete paralysis of voluntary muscles, except for those that control the eyes. People with locked-in syndrome are conscious and can think and reason but are unable to speak or move. Vertical eye movements and blinking can be used to communicate. Locked-in syndrome (LIS), also known as pseudocoma, is a condition in which a patient is aware but cannot move or communicate verbally due to complete paralysis of nearly all voluntary muscles in the body except for vertical eye movements and blinking. At ImpalaCare, we ensure we build our complex care in the home around the individual symptoms, needs and wishes of each client with LIS to create bespoke care designed to maximize quality of life. Communication using the most appropriate aids and methods is a vital component allowing the client to talk with the care team, express choices and provide consent. www.rarediseases.org.uk , www.thebraincharity.org.uk has additional information.
